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  • br The five resources that scored highest on suitability

    2020-08-12


    The five resources that U-46619 scored highest on suitability, in descending order, included: Caring for Someone with Cancer, 2017 Ed. (68%), Caring for Someone with Cancer, 2014 Ed. (66%), Frankly Speaking About Cancer: Caring for a Loved One (64%), Frankly Speaking About Cancer: Ten Tips for Caregivers (64%), Caregiving: Trusted Information About Caring For Someone With Cancer (59%), and Caring for the Caregiver (59%).
    As per the SAM, the readability of 51 (93%) resources were deemed “not suitable” and required educational levels of grade 9 and higher; 3 resources (5%), including Managing Caregiver Stress, Caring for the Caregiver, and Support for Caregivers: When Someone You Love Is Being Treated for Cancer were found to be “adequate” and were appropriate for grade levels 6 to 8, and 1 (2%) resource, Communicating When A Loved One is Ill, met the superior cut-off and was suitable for grade 5 educational level and lower.
    The mean DISCERN score as a percentage was 49% (SD 11.5) and the median DISCERN score was 47% with the first and third quartile: [39% – 60%]. DISCERN questions related to the relevance of the
    The five resources that scored highest on quality, in descending order, included: Caregivers and Families (68%), Support for Caregivers: When Someone You Love Is Being Treated for Cancer (68%), Caring for Someone with Cancer, 2017 Ed. (68%), Caring for Someone with Cancer, 2014 Ed. (68%), Carer Gateway: Cancer (66%).
    Descriptive statistics for individual items on the unmet needs assessment can be found in Table 3. The mean number of unmet needs addressed among the sample was 9.9 (SD 5.8), with 48 (87%) resources addressing less than half of caregivers’ needs (less than 16 items). The needs domains that were most addressed were the partner or caregiver impact and daily activities domain (mean=3.9, SD=2.3) and the emotional and psychological domain (mean=1.9, SD=1.2). Domains often neglected were the spirituality domain (mean=0.4, SD=0.6) and the comprehensive cancer care domain (mean=1.5, SD=1.3). Items related to the possibilities for caregivers to participate in patient care (mean=0.7, SD=0.4), emotional support for caregivers (mean=0.7, SD=0.4), and caregiver health (mean=0.7, S =0.4) scored the highest. Items related to the appropriateness of information provided by healthcare professionals (mean=0, SD=0.1) and support dealing with changes in identity (mean=0, SD=0.1) scored the lowest. Resources created by cancer organizations and associations scored higher (n=41, mean=11.3, SD=5.6) than resources created by cancer centers and universities (n=14, mean=5.9, SD=4.2, t-test p=0.002). Resources published in Canada, the United Kingdom, Australia, New Zealand, and Ireland collectively scored higher (n=21, mean=12.2, SD=6.1) than resources published in the United States (n=34, mean=8.5, SD=5.2, t-test p=0.019). Finally, resources funded by non-profit organizations scored higher (n=38, mean=11.2, SD=5.7) than resources funded by universities, governmental departments, cancer centres, and continuing education organizations (n=17, mean=7.1, SD=4.9, t-test p=0.015). r> The five resources that scored highest on usefulness, in descending order, included: Caring for Someone with Cancer, 2017 Ed. (71%) Caregivers and Families (70%), Caring for Someone with Cancer, 2014 Ed. (65%), Supporting someone with cancer (61%), and I’m Looking After Someone with Cancer (59%).
    3.3 Cluster Analysis
    The cluster analysis based on SAM and DISCERN scores revealed two clusters of websites: (1) with the highest scores for both assessment measures (n=15) versus (2) those with lower or moderate scores on both
    assessment measures (n=40). Clustering cohesion and separation as measured by the silhouette coefficient was satisfactory (0.5) [17]. These clusters were respectively named ‘Best quality’ websites versus ‘Medium/low quality’ online resources. The top websites within the ‘Best quality’ website cluster were: Caring for Someone with Cancer, 2017 Ed., Caring for Someone with Cancer, 2014 Ed., Frankly Speaking About Cancer: Ten Tips for Caregivers, Caregiving: Trusted Information About Caring for Someone With Cancer From the American Society of Clinical Oncology, and Support for Caregivers: When Someone You Love is Being Treated for Cancer. None of the website characteristics were associated with the clusters. Higher scores on the unmet needs assessment were observed among the ‘Best quality’ cluster (mean=14.0, SD=5.8) versus ‘Medium/low quality’ cluster (mean=8.4, SD=5.0, t-test p-value<0.001)
    4. Discussion and Conclusion 4.1 Discussion
    Growing awareness of caregivers’ desire for information has resulted in the production of numerous